The two most useful sources of online information on Fragile X Syndrome are:

The National Fragile X Foundation website. This US-based foundation aims to unite the fragile X community through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for fragile X syndrome

FRAXA Research Foundation website. This US-based, parent-initiated research foundation supports scientific research aimed at finding treatments and a cure for fragile X syndrome. The website contains information on symptoms, cause, testing, treatment and research.

Links to Media Stories About Fragile X:

To find out what’s happening in other countries, visit these support group websites:

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