Nau Mai, Haere Mai, Welcome!

Together we are stronger and together we support each other learning to live the Fragile X way.

Around 22,000 New Zealanders are affected by Fragile X

What is fragile X syndrome? 

Fragile X Syndrome (FXS) is a genetic condition that causes learning/intellectual disability, anxiety, behavioural and learning challenges, delayed development, speech and communication challenges, sensory sensitivities and autistic like behaviours. Strengths include strong imitation skills, good memory and great sense of humour. While there is currently no cure for FXS, targeted inventions, supports and environmental accomodations can make a big difference to positive life outcomes for people affected by FXS.

About Fragile X

About Fragile X

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Newly Diagnosed

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For Professionals

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Family Stories and News

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